Tuesday, 22 January 2019
My Little Blog of Mistakes
As I wrote that opening paragraph, a little voice in my head said "you probably picked the wrong blog site, Dumbass". I also heard "no one is going to find this blog, let alone read it", followed by "you're going to ruin your wet nail polish for no good reason". But I digress.
This could well end up to be another mistake, but at the very least I will improve my typing speed and perhaps clear the clutter from my mind. As a middle-aged woman, currently housing a young adult daughter and her main squeeze, their two geckos, a senior aged sister and her two shitzus and two cats, my mind can tend to get a bit cluttered. So can my house, but that's for another blog.
I could likely go back to my childhood for mistake topics to write about, but I think I'll just save everyone the heartache and take it back about five years ago. It's a good starting point, as it was right about that time that I started an entirely new life chapter. I think perhaps the book was upside down though, because not much turned out the way I had originally planned my story.
Why five years back? Because five years ago I became "uncoupled" (as Gwyneth Paltrow termed it), and the mayhem began. So if you're willing, or have nothing else to read, check back frequently as I start to recant my tales of mistakes. You'll either laugh, cry, or beat your head against the screen. At the very least though, I hope you get some enjoyment out of this and maybe learn a little something from someone else's mistakes.
Tuesday, 21 June 2016
The Graduate
I have just seen the most beautiful young woman. She is tall and lithe, elegant and stunning. She radiates youth and happiness. She is my daughter and tonight is her high school prom.
Looking at her, I am filled with love and pride, amazement and awe, and a little envy. I love this girl with all of my heart, and have from the moment I first held her.
I can remember being unable to imagine her starting school, let alone finishing it.
I have watched her struggle, cope with more than she should have had to, and feel more pain than most kids do. I have also watched her rise to every challenge and look life (and peoplw) square in the eye with a little bit of "I dare you". She didn't always succeed at the challenges, but she always found the courage to face them. I have always been proud of her for not giving up, and she can't possibly know how much I respect her for it.
I am amazed when I look at her and see glimpses of so many good family traits, from both sides. She has the physical features of both her father and I, fortunately the more attractive ones. She has her aunts love of purses and impulsive change; my mothers love of baking; her paternal grandmother's feistiness; my Dad's creative abilities; her father's love of animals, and my sense of humour. She managed to take a little good from all of us and mold those traits into an intelligent, talented, witty, soulful and beautiful package. To me, that is an amazing thing.
Tuesday, 16 February 2016
Alice and the Rabbit Hole
Those who know me are aware of the things I'm passionate about. To name a few, I'm very passionate about
I am so very tired and frustrated of dealing with a system that is so irrevocably broken that I fear there is no hope of it ever being turned around. It's too far gone now. I'm tired of hearing of people who have fought for years to get help for their children/siblings/students only to lose them in the end. I'm tired of watching these kids get tired of waiting for help, and frustrated beyond belief when I keep seeing ads and pamphlets about the "outstanding" work and
I have fought with this system for years. By "fought" I mean that I have tried to calmly explain, reason, and articulately express to countless "team" members the type of help that is required. I have been driven to tears, raised my voice, slammed my fist down on one occasion, walked out of meetings and resorted to threats of media coverage. There have been letters to the local MP, the MLA for the riding (although not written by
Let me explain how this "system" works, for anyone who is lucky enough to know nothing about it, and indulge me by letting me tell you a story. In the interest of tying this into the title, let's name the "fictional" patient "Alice". The first thing that has to happen to start the story off is that someone must first recognize that something is going on with Alice. She is young, so it is unlikely that she can come forward with her issue, as she is unable to fully explain what she is feeling and thinking. The next step is a visit to Alice's family physician who will do her best to decide whether Alice needs specialized treatment and will then make a referral through the local children's hospital Mental Health Department. Now, this is where the story starts to go to hell.
Initially, there is relief that "someone" is going to help Alice. After all, there has been a referral to the Mental Health Department, and everything her parents have seen and heard tells them how
Then, one day they get that call that they've been waiting for. Finally, an appointment!!! Help will surely be quick and swift now. Oh wait - no, this appointment is only to assess and determine whether a psychologist, psychiatrist or social worker is required. And by the way, if Alice's parents happen to have given in while waiting and started seeing a private psychologist whom their child has started to make a connection with, well "sorry guys, we can't help you. It's either us or them, so you'll have to drop the private doctor". Well, if they've still got any belief in the "system", then they play by the rules and drop the one person who has been at least trying to help this situation. Then they wait for another couple of months after the assessment, because there is a very high patient/psychologist ratio, and the waiting list is quite lengthy. They must wait for a spot to clear. In hindsight, it's scary for Alices' parents
So, the family basically just
The relief of being matched up with the right professionals is quickly short-lived. They got past the waiting list, so things are surely going to start progressing, right? Wrong. First off, Alice needs the right match and not just in the specialty sense. If the person assigned to her can't seem to find footing because there's something missing in the connection between them, then she's no better off and possibly worse off. If the professional in question can only see her once a month when clearly she needs to be seen weekly, well then she's in another bind. Now, one may be lucky enough to find the right match early on, or be transferred early on to someone better suited, which is what happened in this story. So, she starts to make a little progress and then finds out that one of her team members is leaving to go head up a board of some sort or another, and the other is going on maternity leave, so she's back on another waiting list. Alice
Be Alice for a moment. You're not yet an adult. On top of the issue of hormones, lack of confidence, the high level of anxiety you were referred for in the first place, you're now feeling let down. It's become pretty clear that nobody really cares except your family. Maybe you're being a drain on your family. You're tired. Tired of being given the run around, tired of feeling this way, tired of having to tell your story to new people every time you turn around. So, what do you think your alternative is? Now it gets really messy. You're rushed to the children's emergency department because you've voiced a "plan", or worse. At best, you're there for a minimum of 2 hours before a crisis team worker sees you. You tell them your history, what you feel, why you feel it. This takes another hour. Your family meets with the crisis team worker for an hour. Then you ALL
These patients may be young, but they are wise. After all of those hours and no one reassuring them that they will look after them and map out a solid plan for hope or help, these kids will basically say whatever they think the doctors need to hear in order to let them the hell out of this place. They're tired, more tired than when they arrived. And the next day they are back there again to start the circle all over. The lucky ones are, anyway.
Now, be Alice's parents for a paragraph or so. You've just been at the hospital for almost 15 hours. You don't get to meet the psychiatrist and talk to her - that's privileged between her and Alice. You have no idea how much the psychiatrist has been told, or what they've been told. All you get is a 2 minute face to face to be told that the Alice says she is "safe" now and there is no need for admission. Really???? Seriously??? This is when an Alices' mother starts to distrust, get angry and lose faith too. The next day is spent frantically making calls to the psychologist, the psychiatrist and the social worker. However, since the patient deemed herself good to go a couple of months ago, the file has been closed. They will need to be referred again by the family doctor.
The family doctor is booked solid for the next 2 weeks. Now the protective mama bear is pissed and causes a scene with the doctors' receptionist who then hustles her and Alice into a waiting room to save everybody more embarrassment. The family doctor calls right away to make an emergency referral back to the same place Alice started. Three weeks pass, no appointment. Calls to the center determine that no one has any info on the patient in question, get the doctor to send a copy of her file. Three more weeks. Finally, it's been 3 months and another incident and another phone call from Alice's mother, who is now starting to unravel herself. The answer is that they've just now determined who the specialist will be, but he's booked until July. This is May. The word "media" is spewed out and
Alice is now four years in. She finally has the right team. Things are stable, not better, but stable. Then another diagnosis comes from left center. This one is uglier, harder to understand and cannot be formally diagnosed until the age of 18. However, there are medications that can help. And there is a program that might help - it's 3 months long and there's a waiting list, but it might help with a couple of the issues. Okay, then.
It takes 2 months for the paperwork to be done. Somehow the appointments get sidetracked and the paperwork doesn't get finished until September. It doesn't get sent until October. The first meeting isn't until December. In the meantime, another incident and another foul up. EHS dispatch somehow or another decides to route Alice to the adult hospital, even though the paramedics are pushing for the children's hospital where she is being followed. This doesn't go well. Alice and family are left waiting in a hallway for 3 hours before being seen by a nurse or doctor. The distress and depression are now giving way to anxiety and anger. Another 3 hours in an emergency bed and things are getting out of hand. So much so that the charge nurse wants the patient sent under escort to the hospital that should have been picked in the first place. Three more hours at the second hospital. Alice (who was originally in a state of despondency), by this point is now angry and being treated as a threat. No frigging wonder. Other than the paramedics, Alice has not been shown any compassion, respect or psychological treatment whatsoever all day long. It's now 11 pm. She says something very rude to the resident who then complains to her superior. The superior is the psychiatrist on call. He berates her, calls her disgusting and signs the paper to get her out of "his hospital". At no point does he make any attempt to meet her parent who has been waiting for hours outside. Alice saunters out of the hospital doors unattended and no one bothers to see where her parent is (she was right outside the door, but that's not the point). Basically, they've sent Alice home in a worse state then when she arrived. Again.
A formal complaint is made by her parent. A protocol is put in place for any future treatment for Alice. EHS has been sent info on the patient and now know where to route any future emergencies. An apology by, and reprimand for both the resident and psychiatrist on call. Okay, progress? If only.
December, and the first appointment for intake
The first thing (or so I'm told) was that a nurse met Alice and parent to fill out paperwork. An
So Alice has now decided to opt out of this program. Who can blame her? Hopefully her story will have a happy ending, but it seems that she will be doing most of the story writing herself, with little help and lots of fumbling
Sheer madness. No wonder most of the Alices in this world
And that, my friends, is the end of this story. For now.
Tuesday, 26 January 2016
Long goodbyes
I've never been one to drag out goodbyes. I'm the type that will drop someone at the airport door rather than go in and wait for them to leave. I'm the one that doesn't give a last backward glance as I'm leaving. I just don't like saying goodbye to anyone.
Yet, here I am again saying goodbye to someone I love dearly. This time it's my mother, who is losing her battle with dementia.
Just over two years ago, I sat in the same building saying goodbye to my father who lost his own fight with the same illness. At the time, I couldn't envision having to do it again even though my mom had already been diagnosed. I guess I thought I'd have more time with her.
My dad left my world very quickly. Although he'd been ill, once he was declared palliative he was gone within hours. Not so with my mother. My sister and I have been by her side for 6 days, watching her slowly fade from us.
And it really is slow. She has remained in the same unresponsive condition for the last four of those days. She is stubbornly clinging to life, and it is heartbreaking and painful to witness.
We always used to say that my father was the stubborn one, and blamed it on his Cape Breton roots. Whenever I would dig my heels in on something, I'd be told I was just like him. Well, now I'm thinking that some of that stubbornness and determination just may have been passed along from my other parent.
Even in her unresponsive state, she clearly knows what she wants and what she doesn't. When the care team puts pillows behind her legs or between her feet to prevent pressure sores, my sister and I make a bet as to how long before she wriggles around enough to get rid of them. Her average is 15 minutes. She always hated too much stuff around her sleep space. When it's time to turn her onto her side we give each other a knowing look because we know she will manoever her way onto her back again. Average reposition time of 4 minutes. She hates having those sponge things put in her mouth to prevent dryness, and clamps her lips shut as soon as she feels it. She is one determined lady.
In the last six days, my sister and I have had a lot of time to reminisce. It's funny how we can both have such different memories of the same person. I suppose we both had a different mother in some ways. My mom was in her late 30s by the time I came along and dad was 40, so my sister had the younger, more energetic parents. I had the "embarrassingly old" parents (at least in my mind at the time). Her mothering style was much more fun for my sister than for me. Of course, I was likely more of a handful to deal with. I wish I'd had as much time with my parents as my sister did, but at least I made it through my forties before losing them.
For hours on end, my sis and I have sat together by our mothers bed telling each other "Mom" stories that the other never knew about, laughing over some and crying over others. Once or twice I swear I saw her mouth turn up into a little grin when we talked about some of the funnier things. Yet, although we desperately would love to keep our little circle of three, it's time for us to become just a really small gang of two now.
We've tried everything to help our mom make this transition. We've told her over and over that it's okay to let go. We agreed with the staff to increase the morphine and dilaudid and to take no measures to revive her. We've assured her that we will look after each other, we've forgiven her for anything she may think she'd done wrong. I even sang to her. Anyone who has ever heard me sing would think that surely that would do it.
Yet she stays. And once more I find myself trying to will someone to say goodbye to me, even though I hate goodbyes. Especially long ones.
Saturday, 22 August 2015
The Semicolon
The next one will be the semicolon symbol, a very small and discreet little marking that will be placed on my inner wrist. A great many people are sporting this tattoo, but I wonder how much of the general population know what the meaning of it is. I'm sure that those who know me will likely think that it's my way of flaunting the fact that I'm a bit of a grammar nerd, but they would be very far off the mark in this thinking. I expect to have to explain to quite a few why I have a semicolon tattoo, and I fully expect to find that a difficult thing to do. However, as difficult and awkward as it will be, I'll explain it as many times as needed.
This symbol represents mental health struggles and suicide prevention. In 2013 there was a vast social media campaign called "Project Semicolon", described as a "movement dedicated to presenting hope and love to those struggling with depression, suicide and self-injury". The aim of the project was to create encouragement, love and inspiration. This project resonates with me for several reasons.
As the parent of a teenager who has struggled for far too many of her young years with severe anxiety, depression and borderline personality disorder, any project or cause that will increase the awareness of these mental health issues has my full support. For too long I have watched my daughter gather up the courage to face each day, never knowing if she will get through the entire day without something triggering a panic attack, setting off an uncontrollable rage episode, another round of depression or the need to cut herself in order to numb the emotional pain. To say that being on the outside of it looking in is heart-wrenching is a definite understatement.
I often feel there is nothing I can do to help this beautiful, intelligent and gifted young woman. It's emotionally, mentally and physically draining on levels that I can't even describe. As a parent, giving her all of my support should be something that comes easily, but it doesn't. We often end up tangled in a web of arguments, mistrust and hurt feelings because I can't always be the "rock" that I should be to her and I've not yet figured out how to not take things personally in the heat of the moment. The personality disorder episodes are unchartered waters, and each time it happens it's hard to know what course to take, and I somehow usually get it wrong and make things worse. Fortunately, she always finds her way back with some kind of inner determination that I only wish I had myself.
My hope with getting this little tattoo is that when I lose my patience and my own emotional strength in the midst of this journey with her struggle, I can look at it and remember what it's there for. I hope that it reminds me of the parallel to a writer who chose to use a semicolon instead of an ending, and that she has chosen to fight this battle instead of giving up. I hope that when she catches a glimpse of it every now and then, she realizes that it's there because I love her. It's there because I want to encourage her and support her, even if she often doesn't think so.
So with this next tattoo, I won't be taking the pain-killing Tylenol. It just seems fitting that I feel the pain with this one.
Tuesday, 7 April 2015
Changes
I've realized recently that I don't like change. That would be well and fine if change didn't seem to be the constant in my life. It's the one thing that I can count on, almost daily. I suppose that resistance is futile at this point, and truth be told I haven't got much left to resist with anyway.
I've had more changes in the past few years than most people do in a lifetime. To be honest, not all of them were bad, and some were absolutely necessary. A couple of them brought me a great deal of good (even if it took me a while to realize that). However, it's the changes where I lose people that are the most difficult to deal with. I'm so tired of losing people that mean so much to me, whether it's from distance, death, the parting of ways, or shift in life circumstances. It sucks any way you cut it.
Currently, I'm finding myself in the position of losing another relationship that I desperately want to hang onto. I doubt that anyone who has had loving parents ever wants to see the inevitable change that comes with age. I certainly don't, but another round with Alzheimer's, the most challenging opponent ever, keeps the changes coming. I'm seeing them in my mother, and I'd rather not. Burying my head in the sand isn't going to stop these changes, nor will any of the other attempts at evasive action that I keep grasping at.
Each time I visit her, it seems to take her a little longer to realize that it's me. It breaks my heart, and I always end up beating myself up over the fact that I don't visit her as often as I should due to the other responsibilities in my life and the fact that I can't be in ten places at once. My logical side tells me that she has no idea how long it had been since I last saw her, but my emotional side takes me to task - every single time.
The fact that she is unhappy where she is doesn't help matters. I was so grateful when we found a facility where she could get the proper care, and at first she was very content there. It made things a lot easier to deal with, for all of us. The contentment ended with the arrival of a new "roommate" who was very unpleasant to my Mom and constantly tried to physically prevent her from entering her own side of the room by blocking the doorway. Had this been a couple of years ago when my Mom's feisty temperment was still in play, I'm pretty sure there would have been some humour-filled yet firm retaliation. Instead, it happened at a time in her life where my mother was timid, fearful and unable to stand up for herself. This has created a set back in her well-being and happiness, which in turn, manifests more confusion in her mind. For months my sister and I had been trying to get the facility to sort this out while we waited for an opening at another care facility more suited to her needs. As is typical when dealing with any kind of health program, progress seemed at a standstill. Sometimes it feels like most of my life is spent waiting for the provincial health system to come up with a "care plan" for those that I love so dearly, and I can do nothing but wait and hope the plans don't come too late.
When we finally got a call that there was an opening in another facility, we realized that it would now be too detrimental to make any change to Mom's living arrangements. My biggest fear in all of this (aside from the physical safety of my mother), is that it would speed up the progression of her disease. After consulting with the her physician it was confirmed that would likely be the outcome. Having gone through this once already with my father, I'm all too well aware of how any sudden changes or emotional upset can affect the mental state. Hell, even without having Alzheimer's, unwanted and unpleasant changes can have these affects. I know, because I struggle with unpleasant changes so frequently that I often have a hard time keeping myself together enough to make it through an entire week without losing my sanity. I can't imagine what it's like when half of your mind is already ravaged and confusion runs rampant through your day.
It's heart wrenching to see my mother afraid, confused and in tears most of the time. For the last few years my mom was very easy going and content. Unless she was having an episode of dementia related hallucinations, you could always depend on a smile and a laugh from her. Now, those smiles take a bit of coaxing and the laughter is a bit quieter. I could also depend on her to know what was happening in my life. She now forgets more frequently that I have a job, that my daughter is almost grown, that I have my own house. I hate those changes with all of my being.
So far the only thing that hasn't changed with her lately is her knowledge that my daughter is her granddaughter. When she sees her, she lights up and says "there's Emily". It brings me to tears every time, because Mom was so overjoyed to be a grandmother.
Recently I visited on a rare day when she recognized me and said "there's my baby" with her arms outstretched. I ended up having to turn my head away so she didn't see my eyes well up. It isn't because the words made me sad, but because I knew that the number of times I would get to hear those words are limited.
I often think of the quote that says "without change there is no growth". I used to like that quote because it seemed to say to me that good would always come from difficult changes if I waited long enough. However, now it seems to me that the trend with changes to my world always mean a loss of some sort.
And every loss seems to take another little chunk out of my heart.
So if change really means growth, I don't want to grow anymore.
Sunday, 14 September 2014
Sixteen Candles - A Birthday Letter for my Daughter
When you were born, I couldn't envision the day that you would turn sixteen. You were so tiny and so new, that the thought of you as a teenager was unimaginable. Yet here we are a few days from your sixteenth birthday.
You have grown from such an adorable, quiet and shy little girl into a beautiful, engaging and articulate young woman. The tenacity that you show in accomplishing your goals is something that continues to amaze me. Your courage in facing adversity and the challenges that you encounter daily is nothing short of incredible.
The way that you so maturely handle the onerous task of trying to make others understand what sets you apart makes me so very proud of you.
I realized recently that you have been swimming against the tide since before you were even born. Due to some complications, during the last months of your "incubation" I was consumed with worry that you wouldn't survive to see this world. In true "Emily" nature though, not only did you survive but you were too impatient to even wait until the due date, thus arriving five weeks early. Thankfully, though you weighed all of five pounds, you were healthy, feisty and bossy right from the start.
From the first day, you slept and ate on your own schedule rather than the one that the baby books said you should (something you continue to do to this day). You reached the milestones well ahead of your time, and you constantly surprised everyone with your early accomplishments. Everything you did was exactly when you wanted to, never when we were expecting it, and always with a little streak of mischief and a lot of independence.
It's hard for me to look at you and not see the baby girl that gave my life such purpose. I still sneak in and watch you when you're sleeping (don't get creeped out - all mothers do this), and I still see the little girl with the blonde curls who just couldn't wait to be "growed up". Well, you're almost there and I'm still not ready.
I'm not ready for the boyfriend, not ready to see you behind the wheel of a car (and no, not mine) and I'm not ready to see you with a job. Then again, I wasn't ready to hear you talk, or walk or start school but those things all happened, and it turned out just fine.
I know that life isn't always a bed of roses when you're a teenager, but soon enough you'll be out of the teen years. High school will become a distant memory as you move on to other things. You'll have your ups and downs, and the downs will sometimes seem insurmountable. I can't tell you that will ever stop as you get older because life will continue to give you ups and downs. How you handle the downturns will help determine the outcome, so muster as much grace and courage as you can to get through them. You will welcome people into your life for many years to come, and you'll lose people as well. Friends and lovers will come and go. It will hurt at the time, but remember that when people leave you it isn't a reflection on you. All it means is that their place in your story has come to an end. It doesn't mean the story is over, just that a new chapter needs to be written.
So, write your story Emily. Fill it with as many chapters as you can, and as many pages as you can fit. Edit as necessary, review often. You may not have written the first few chapters by yourself, but you now have total control in how the rest of the story unfolds. Write it with passion, write it with pride and write it in purple because no one will expect that.
Happy birthday sweetheart, I love you to the moon and back.